Going to try this again
Pain Spectrum - low red
BM/RD Index - 20
Fuzz meter - 6
No fancy side posts (for now). No worrying about how I sound. just going to try and get back into the idea of talking about how I feel and seeing where it goes. For the record:
The new pain doctors seem great. Very helpful. Very informative. Completely get me and how I respond.
I have some new pain meds that help a bit. But not as much as anyone would like. Most of the time, whatever they try to give me ends up making things worse. So its still a real crap-shoot.
Still working on getting published. I am ramping this up from no effort whatsoever to consistent effort. I have been rewarded with two rejection letters so far - not bad! Also starting in (again) on the second novel and have done a bunch of work for another project that is stalled. But it was real work, so I am counting it as a good thing.
The past year since posting saw some very very good progress on managing the pain. Was walking and moving around a lot better, especially considering where I had been. The trip to Italy was a success. I plateaued with the meds and then they found some stuff wrong with my back (who knew?). I got some shots and, yep, it made everything worse. So I'm back where I was last year; actually, as of right now, I'm worse. And you know what - I'm ok with that. It was a good effort. The ill-effects are wearing off, and I'll deal with everything else as it happens.
One last bit. Someone asked me why I have never addressed my illness by name and I wasn't too happy with my answer. Chronic refers to the pain I'm in, not what I have. I suffer a host of ailments stemming from post-lyme syndrome, which itself stems from late lyme disease. There is nothing wrong with me that I am ashamed of. But sometimes, I tend to forget this. I shouldn't. And that, I guess, is the real reason why I am coming back to this blog.
Continue...
BM/RD Index - 20
Fuzz meter - 6
No fancy side posts (for now). No worrying about how I sound. just going to try and get back into the idea of talking about how I feel and seeing where it goes. For the record:
The new pain doctors seem great. Very helpful. Very informative. Completely get me and how I respond.
I have some new pain meds that help a bit. But not as much as anyone would like. Most of the time, whatever they try to give me ends up making things worse. So its still a real crap-shoot.
Still working on getting published. I am ramping this up from no effort whatsoever to consistent effort. I have been rewarded with two rejection letters so far - not bad! Also starting in (again) on the second novel and have done a bunch of work for another project that is stalled. But it was real work, so I am counting it as a good thing.
The past year since posting saw some very very good progress on managing the pain. Was walking and moving around a lot better, especially considering where I had been. The trip to Italy was a success. I plateaued with the meds and then they found some stuff wrong with my back (who knew?). I got some shots and, yep, it made everything worse. So I'm back where I was last year; actually, as of right now, I'm worse. And you know what - I'm ok with that. It was a good effort. The ill-effects are wearing off, and I'll deal with everything else as it happens.
One last bit. Someone asked me why I have never addressed my illness by name and I wasn't too happy with my answer. Chronic refers to the pain I'm in, not what I have. I suffer a host of ailments stemming from post-lyme syndrome, which itself stems from late lyme disease. There is nothing wrong with me that I am ashamed of. But sometimes, I tend to forget this. I shouldn't. And that, I guess, is the real reason why I am coming back to this blog.
Continue...
posted by KS at 4:26 PM
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